Heart defects are one of the most common birth defect. They are the leading cause for birth defect deaths. It's estimated 9 out of 1000 people are born with a congenital heart defect. Many heart defects do not need treatment, but some complex congenital heart defects require medication or surgery.
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To help understand Congenital Heart Defects we think explaining how the heart works first will help.
The Heart:
Your heart is a muscular organ. It has four chambers that are designed to pump blood around your body. When a heart is formed properly there are two large chambers (ventricles) and two receiving chambers (atria) For those with a Congenital Heart Defect things arent formed like they should be meaning the heart cannot work as it should.
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The Definition of Congenital Heart Defects
Congenital means ‘born with’ or ‘from birth’. Sometimes a Congenital Heart Defect could be left unnoticed until adulthood, but most are detected at birth. Most of these defects can become corrected with surgery.
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What are Congenital Heart Defects?
Congenital Heart Defects occur soon after conceptio & the heart forms abnormally. These defects can range from very severe malformations, eg. complete absence of one or more chambers or valves or simple problems eg. holes between chambers of the heart.
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How are Congenital Heart Defects Detected?
Congenital Heart Defects can sometimes be picked up when you have an ultrasound scan during pregnancy (usually at the 20 week scan), but sometimes they are not found until after your baby has been born. Some conditions may not be discovered until the child is older or even an adult.
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Signs and Symptons
Signs & Symptoms in a Newborn
There may be few or no symptoms for a newborn with a Congenital Heart Defect. The defect may or may not have been picked up on your scans.
These signs and symptoms can sometimes occur in Newborn Babies with A Congenital Heart Defect:
A bluish tint to the skin, lips, and fingernails also known as Cyanosis
Poor circulation
Fast or difficult breathing
Tiredness
Finding feeding hard
Poor blood circulation
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There are 35 known Congential Heart Defects and a whole list of other things that can affect the heart. The most common include:
Aortic Stenosis
Atrial Septal Defect
Atrio-ventricular Septal Defect
Cardiomyopathy
Ebstein’s Anomaly
Eisenmenger Syndrome
Pulmonary Stenosis
Tetralogy of Fallot
Transposition of the Great Arteries
Ticuspid Atresia
Truncus Ateriosus
Ventricular Septal Defect
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Congenital Heart Defects are the number 1 birth defect in UK & are a main cause of loss during pregnancy.
Many people know nothing about heart defects until they have a child born with one.
These defects are not something that can be cured, the heart will have to be monitored through the persons life.
Many will need multiple open heart surgeries and in some cases they may even need a heart transplant.
Babies born with Congenital Heart Defects will most likely need open heart surgery at just a few hours or days old.
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Treatment of Congential Heart Defects
Each person who has a Congential Heart Defect is similar to the next but are unique in the fact that they are effected differently.
There are many surgeries used to help repair the heart, where doctors try to prevent the need for further surgery.
People who have Congential Heart Defects will be monitored throughout their lives for any further problems
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Congenital Heart Defect Facts
In the UK there are about 4,600 babies born with congenital heart defects each year
The outlook for babies born with congenital heart defects has improved dramatically over the past 30 years
At least three-quarters of babies with congenital heart defects are predicted to survive to adulthood
The outlook for babies born with congenital heart defects varies widely depending on the complexity of the defect. Survival rates in a number of simple conditions are close to 100%
Around 3100 operations and 725 interventional cardiac catheterisations are performed each year on babies and children with congenital heart defects
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As we have said before Congential Heart Defects aren't curable. This means that in some cases their is nothing more the doctors can do. In others the person may live a full life not knowing there is anything wrong.
The awareness of Congenital Heart Defects is low & you probably didn't know anything about it until now but we hope the information we have provided has helped a few people learn a little more
Thank you for joining us tonight
Normal PP's will resume shortly
Lauren, Jade & Tessa xx
www.nhs.uk
www.chd-uk.co.uk
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