Millie - Rose came into our lives on 14th June 2011, a much loved and wanted sister to Michael and Lexie and daughter to ourselves, Lyndsay and Michael.
Summer 2012 not long before Millie’s first birthday we noticed Millie was not quite herself, struggling to dirty her nappy, screaming in pain each time she needed to go and she seemed to catch every bug virus going. Drs gave her various antibiotics, calpol and lactulose. Nothing ever seemed to work though, despite all this she was still a happy friendly loveable little girl.
Christmas 2012 is when we noticed Millie was losing a bit of weight and again seemed to be catching every bug going, me and Millie's dad took her to the hospital, walk in centre and local GPs at least once a week, they put it down to ear infections again giving her lots of antibiotics etc.
February came and our beautiful girl wasn't getting any better, she was in fact worse even after the hospital put her on iron as she was very anaemic. Millie’s eyes became black and swollen and a lump appeared on her head even though she had no energy to move so couldn’t have banged it. We made the decision to take Millie to Alder Hey, a children’s hospital as we weren’t getting real answers from any medical people close by.
When we arrived at the hospital Millie was seen straight away even though there was a 3hour waiting time, she had lots of tests. The next day we were met by lots of doctor and one had a very serious look on his face, we knew it was going to be bad news but neither of us were prepared for what he said... "Your daughter has Cancer".
Further tests were carried out; we were in so much shock I don’t think I knew what the tests were for. Time seemed to stop, I wondered if they were testing her again to see if they had made a mistake but when we were met once again by another serious faced doctor my heart sank. He told us Millie had Neuroblastoma, a very aggressive and hard to treat Cancer, and she was in the final stages, Millie was in serious trouble, we were numb.
Chemotherapy started straight away, we focussed on Millie and tried to stay positive. Inside we were going through every emotion possible, devastation, heartbreak, despair, denial, blind panic, anger and then came the harsh realisation of what this cancer could do to our beautiful Millie Rose. This was when we started to research the disease and we began to learn about what that really meant for us as a family. We realised even if Millie could beat this monster there was an 80% chance it could come back, and if it did there is no relapse protocol in the UK.
Millie has finished her 80 days of chemotherapy and started TVD on 20/5/2013 as her bone marrow still has disease in it.
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